Un Autre Regard: our newest manga on blind football
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of people living with rare diseases. Fondation Ipsen strives for a future where all rare disease patients receive timely diagnosis, respect, and support.
Our newest books
Ma Différence, ma force
“Being different doesn’t mean being less.” In this intimate and inspiring story, Blandine shares her journey with White-Sutton syndrome, a rare genetic disorder that was diagnosed late in life. She recounts the misunderstanding and pain she faced, but also the strength that comes from acceptance.
Qui brille au combat
Adapted from Joséphine Japy’s film of the same name, Qui brille au combat immerses us in the daily life of a family torn apart by Bertille’s rare illness, which went undiagnosed for a long time.
Jack and the Amazing Cell City
Jack loves superheroes. But when he learns that he has Mosaic Variegated Aneuploidy syndrome, or MVA, he has a lot of questions about what is happening inside his body.
SoIn for Society and Inclusivity #6
The seventh art, art therapy… SoIn #6 highlights how art can serve as an outlet, a form of therapy to exorcise, sublimate, or transcend disability—hence the introduction of the “Art Minute” in the magazine…
Little Issue #15
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Uncovering Rare Disease. Volume 5
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. This special edition book compiles all of the conversations from the 2025 webinars, which are reproduced in The Rare Disease Gazette.
The Rare Disease Gazette #33
In this edition, Erika Berg, PhD, hosts a conversation about Building a global community for rare disease.
Guerriers pacifiques
Since when have humans been participating in sports? And what exactly does that mean? The word, which derives from the verb *desporter* meaning “to frolic,” dates back to the 12th and 13th centuries. It encompasses all pastimes, from horseback riding to more leisurely pursuits such as conversation or embroidery.
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