Parole d’Aidants: Book Launch
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, is committed to advancing rare disease detection and care, fostering innovation, and promoting social and educational initiatives. We strive for a future where all rare disease patients receives timely diagnosis, respect, and support.
Our latest stories
Our newest books
La Super Famille de Pauline, la lapine
Pauline, a little rabbit with a rare disease, lives with her big sister Capucine and their parents. There’s a legend in the forest that they’re real heroes.
SoIn for Society and Inclusivity #3
Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.
The Rare Disease Gazette #24
In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.
Autiste… et alors ?
Maxime Vindrier, 26, is a passionate and talented illustrator. Diagnosed as autistic, he speaks about his condition with authenticity and humor in his book Autistic… So What? where he demystifies his daily life with a light and accessible tone.
Recueil de nouvelles. Histoires de vie avec la SLA
Through this collection of short stories, ARSLA not only provides a platform for voices that dare to confront this reality but also pays tribute to the resilience and humanity that endure despite the pain.
The Rare Disease Gazette #23
In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease
Rare Visions
This free poetry book collects poems about patients living with a rare disease. This book was written by Roopa Ramamoorthi, a scientist and a poet.
The Rare Disease Gazette #22
In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare disease.
Living with a Rare Disease Worldwide. Volume 3
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.
Media
Webinar
Webinar – Keys to success: Unlocking health care access for rare disease
Webinar
Webinar – Standing out in the storm: Caregiving in rare disease
Webinar
Webinar – Blooming against odds: Successfully navigating mental health in rare disease
Webinar
Webinar – Advocacy in rare disease: Taking Care of Caregivers
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