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We shed light on rare diseases to accelerate diagnosis

Discover how

Our mission

Fondation Ipsen, under the aegis of Fondation de France, is committed to advancing rare disease detection and care, fostering innovation, and promoting social and educational initiatives. We strive for a future where all rare disease patients receives timely diagnosis, respect, and support.

Our initiatives

Our newest books

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Science

Rare Diseases, from A to Z. Volume 2

26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.
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Comics, Mangas

ADHD

Evie is creative, curious and smart. So why is it difficult for her to focus on homework, keep track of things and even finish setting the table? Evie has ADHD, which stands for attention-deficit/hyperactivity disorder.
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Science

Advancing Inclusion

Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.
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Science

Venture Philantropy

This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.
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Practical

La Dépression. Savoir quand demander de l’aide

This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH. The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.
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Image for SoIn for Society and Inclusivity #3
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Discover our activities in 2025:

Download our 2025 calendar

Any questions?
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