We shed light on rare diseases to accelerate diagnosis

Pauline, a little rabbit with a rare disease, lives with her big sister Capucine and their parents. There’s a legend in the forest that they’re real heroes.

This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.

This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH. The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.

Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.

In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.

Maxime Vindrier, 26, is a passionate and talented illustrator. Diagnosed as autistic, he speaks about his condition with authenticity and humor in his book Autistic… So What? where he demystifies his daily life with a light and accessible tone.

Through this collection of short stories, ARSLA not only provides a platform for voices that dare to confront this reality but also pays tribute to the resilience and humanity that endure despite the pain.

In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease

This free poetry book collects poems about patients living with a rare disease. This book was written by Roopa Ramamoorthi, a scientist and a poet.