Un Autre Regard: our newest manga on blind football
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of people living with rare diseases. Fondation Ipsen strives for a future where all rare disease patients receive timely diagnosis, respect, and support.
Our newest books
Mental Health in Adolescence
How can we support adolescent mental health? Anxiety, sadness, social pressure, identity struggles … adolescence can be overwhelming.
In this illustrated book, epidemiologist Maria Melchior and artist Chaz Hutton cut through the myths to explain what shapes young people’s mental well-being, how early experiences and social inequalities matter, and why prevention is key.
The Rare Disease Gazette #33
In this edition, Erika Berg, PhD, hosts a conversation about Building a global community for rare disease.
Guerriers pacifiques
Since when have humans been participating in sports? And what exactly does that mean? The word, which derives from the verb *desporter* meaning “to frolic,” dates back to the 12th and 13th centuries. It encompasses all pastimes, from horseback riding to more leisurely pursuits such as conversation or embroidery.
The Rare Disease Gazette #32
In this edition, Erika Berg, PhD, hosts a conversation about The Ethics of Rare Disease: Balancing the Needs of the Few with the Needs of the Many.
The Rare Disease Gazette #31
In this edition, Erika Berg, PhD, hosts a conversation about Humans and AI Collaborating to Solve Rare Disease Challenges: Opportunities and Pitfalls.
Artifical Intelligence in Healthcare
Will AI help cure diseases, or put our health at risk? Is it a revolution, or just another overpromise?
In this illustrated book, artist Chaz Hutton and expert Hugues Berry cut through the myths to explain what AI in healthcare really is, what it can (and cannot) do, and why it matters for all of us.
My Coloring Book
A coloring book inspired by the “Les Enfants de la Génétique” collection, designed to raise awareness among young children aged 3 and up about diversity and inclusion.
Raregivers™ Emotional Journey Map Guidebook
One in ten families worldwide are living with uncured rare, chronic and complex diseases – many more are undiagnosed. Our community is global, reaching every remote corner of every country on earth.
Discover our activities in 2025
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