Rare Disease Worldwide

Rare diseases affect millions, yet their stories often go untold. Through our partnership with National Press Foundation, 25 journalists from 21 countries were trained by experts to report on the complexities of rare disease care, focusing on access and advocacy. From Lesotho to Malaysia to Germany, these journalist-fellows are amplifying the many voices of the rare disease community.

Read these powerful stories in the collection of articles: Living with a Rare Disease Worldwide. Volume 3