About Fondation Ipsen

Fondation Ipsen, a non-profit foundation under the aegis of Fondation de France focuses on advancing the needs of people living with rare diseases.

Our Network

We Learn

By integrating insights from both patients and experts, we ensure our initiatives are grounded in real-world experiences and cutting-edge research.

We Do

Through our focus on collaboration and innovation, we ensure that our projects create a durable and meaningful impact on the lives of individuals affected by rare diseases.

We Teach

To raise awareness on rare disease, we produce books and digital content that educate diverse audiences, share patient stories, and provide expert insights.

Our reach

Our ethical policy

Fondation IPSEN is a non-profit foundation under the aegis of the Fondation de France. Together, we aim to uphold the highest standards of integrity while striving to make a difference in the lives of people affected by rare diseases.

The Foundation’s management principles emphasize transparency, independence, and ethical standards, ensuring that all our activities are conducted with the utmost integrity

Download our ethical policy

Our Team

Pr. James A. Levine
President
Cléa Stemitsiotis
Program Specialist
Florian Delval
Head of International Relations
Céline Colombier-Maffre
Manager of Publications
Clémence Duffier
Head of Digital Communications
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About Fondation de France

Fondation de France, France’s largest philanthropy network, brings together founders, donors, volunteer experts, experienced employees and thousands of associations, driven by the desire to take action.

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