Science

Venture Philantropy

This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.

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Science

The Rare Disease Gazette #24

In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.

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Science

The Rare Disease Gazette #23

In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease

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Science

The Rare Disease Gazette #22

In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare disease.

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Science

Living with a Rare Disease Worldwide. Volume 3

This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.

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Science

Uncovering Rare Disease. Volume 3

Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases.

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Science

The Rare Disease Gazette #21

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in Technology.

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Science

Les Fentes de A à Z

A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations (MAFACE).

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Science

The Rare Disease Gazette #19

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of caregivers.

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Science

The Rare Disease Gazette #18

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory angle.

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Science

The Rare Disease Gazette #17

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding gap.

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Science

The Rare Disease Gazette #20 SPECIAL EDITION

In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States Food and Drug Administration (FDA).

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