Archives des Science – Page 2 of 4 – Fondation Ipsen

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Living with a Rare Disease Worldwide. Volume 2

This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.

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The Rare Disease Gazette #16

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public narrative.

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The Rare Disease Gazette #15

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the landscape.

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Artificial Intelligence in Science

The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in science.

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Uncovering Rare Disease. Volume 2

This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).

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The Rare Disease Gazette #14

In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of patients.

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Promising Practices

This report includes findings, conclusions and recommendations for adressing gender parity in Science and Medecine

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Rare Diseases, from A to Z

This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare diseases.

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The Rare Disease Gazette #13

In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare diseases.

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The Rare Disease Gazette #11

In this new issue, some of the world’s leading experts in rare diseases discuss personalized therapies.

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Disability: affectivity, sexuality and dignity

Discover our new free book on disability. This book addresses sensitive questions to reflect constructively on disability

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The Rare Disease Gazette #12

In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical care

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Discover our catalog

Our catalog is available for download in PDF format

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