Books

Spotlight

Children

La Super Famille de Pauline, la lapine

Pauline, a little rabbit with a rare disease, lives with her big sister Capucine and their parents. There's a legend in the forest that they're real heroes.

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Children

Oliver, le petit raton laveur

At night, when the whole burrow is peacefully asleep, Charlotte, the little groundhog, is all excited. Mama Marmotte's gentle lullabies do nothing, and the days that follow are tough...

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Science

Venture Philantropy

This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.

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Practical

La Dépression. Savoir quand demander de l’aide

This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH. The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.

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Practical

SoIn for Society and Inclusivity #3

Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.

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Science

The Rare Disease Gazette #24

In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.

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Comics, Mangas

Je suis autiste… et alors ?

Maxime Vindrier, 26, is a passionate and talented illustrator. Diagnosed as autistic, he speaks about his condition with authenticity and humor in his book Autistic... So What? where he demystifies his daily life with a light and accessible tone.

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Biographies

Recueil de nouvelles. Histoires de vie avec la SLA

Through this collection of short stories, ARSLA not only provides a platform for voices that dare to confront this reality but also pays tribute to the resilience and humanity that endure despite the pain.

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Science

The Rare Disease Gazette #23

In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease

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Poetry

Rare Visions

This free poetry book collects poems about patients living with a rare disease. This book was written by Roopa Ramamoorthi, a scientist and a poet.

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Science

The Rare Disease Gazette #22

In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare disease.

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Science

Living with a Rare Disease Worldwide. Volume 3

This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.

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Practical

Entrepreneurs have the DACMAR Advantage

DACMAR is a FAST BUSINESS GUIDE for newbie biotech entrepreneurs. GIVE ME 5 MINUTES: If you know nothing about modern biotech business lingo, grab this book and read the LEARNING BOXES.

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