Books
Parole d’Aidants: Book Launch
It was a privilege to meet the inspiring writers and caregivers as they shared their powerful stories of resilience and love during an event to launch the book.
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Our President, Dr James Levine attended the Indo US Bridging RARE in New Delhi, organized by Indo US Organization for Rare Diseases (IndoUSrare).
We are supporting the ground-breaking start-up pitch contest Pitch4Rare that took place during this event. This visionary initiative aimed at encouraging entrepreneurship and affordable innovation in the rare diseases space while fostering international collaborations.
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Books
Rare Disease Worldwide
Discover powerful stories in our new collection of articles: Living with a Rare Disease Worldwide. Volume 3
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International
Orphan Drug Forum
Our president Dr James Levine shared insights on innovative funding mechanisms for rare diseases at the World Orphan Drug Congress Europe.
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