Media – Fondation Ipsen

Image for Webinar – Keys to success: Unlocking health care access for rare disease

Webinar – Keys to success: Unlocking health care access for rare disease

This webinar aims to share insights, experiences, and best practices in navigating the complexities of health care systems to ensure equitable access for rare disease patients

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Image for Webinar – Standing out in the storm: Caregiving in rare disease

Webinar – Standing out in the storm: Caregiving in rare disease

This webinar aims to provide caregivers with valuable knowledge and strategies to navigate the complexities of caregiving in the context of rare diseases.

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Image for Webinar – Blooming against odds: Successfully navigating mental health in rare disease

Webinar – Blooming against odds: Successfully navigating mental health in rare disease

The discussion aims to empower individuals with rare diseases to not only survive but thrive in their journey towards mental health and well-being.

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Image for Webinar – Advocacy in rare disease: Taking Care of Caregivers

Webinar – Advocacy in rare disease: Taking Care of Caregivers

In this panel discussion, participants will explore advocacy efforts aimed at easing the burden of caregiving for rare diseases.

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Image for Webinar – Advocacy in rare disease: Driving Technology Advances

Webinar – Advocacy in rare disease: Driving Technology Advances

In this panel discussion, participants will discuss how technology advancements could bring new therapies.

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Image for Webinar – Advocacy in rare disease: A Fireside Chat with the U.S. Commissioner of Food and Drugs

Webinar – Advocacy in rare disease: A Fireside Chat with the U.S. Commissioner of Food and Drugs

In this fireside chat with the FDA commissioner, viewers will learn more about the FDA’s commitment to addressing rare diseases and how they incentivize the development of treatments

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Image for Webinar – Advocacy in rare disease: Working the Regulatory Angle

Webinar – Advocacy in rare disease: Working the Regulatory Angle

In this panel discussion, participants will discuss how to navigate the notoriously complex regulatory angle

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Image for Webinar – Advocacy in rare disease: Closing the funding gap

Webinar – Advocacy in rare disease: Closing the funding gap

In this panel discussion, participants will discuss how closing the funding gap in rare diseases requires a multi-faceted approach.

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Image for Webinar – Advocacy in rare disease: Crafting the public narrative

Webinar – Advocacy in rare disease: Crafting the public narrative

In this webinar, we invited experts in communication, public relations, and influencing to discuss strategies and tactics to advance advocacy for rare disease

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Image for Webinar – Advocacy in rare disease: Surveying the landscape

Webinar – Advocacy in rare disease: Surveying the landscape

In this first webinar (free) in the 2023 series on advocacy in rare disease, we examine the advocacy landscape : advocates, organizations, resources, success.

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Image for Webinar – Humanizing the support of patients living with a Rare Disease

Webinar – Humanizing the support of patients living with a Rare Disease

For this last 2022 webinar, our guests will share ideas on how to improve the humanistic support of patients with rare diseases and their families

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Image for Webinar – The urgent need to internationalize databases for rare disease patients

Webinar – The urgent need to internationalize databases for rare disease patients

This webinar will interrogate global experts on how to drive international databases for helping patients living with a rare disease worldwide.

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