Books
Parole d’Aidants: Book Launch
It was a privilege to meet the inspiring writers and caregivers as they shared their powerful stories of resilience and love during an event to launch the book.
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Our president Dr James Levine shared insights on innovative funding mechanisms for rare diseases at the World Orphan Drug Congress Europe alongside leaders in the field: Daria Julkowska, Laura Rodríguez Gallego and Catriona Crombie.
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Books
Rare Disease Worldwide
Discover powerful stories in our new collection of articles: Living with a Rare Disease Worldwide. Volume 3
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Innovation
Indo US Bridging RARE Summit
Attending the Indo US Bridging RARE and supporting the ground-breaking start-up pitch contest Pitch4Rare
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