Webinar – Advocacy in rare disease: Working the Regulatory Angle
In this panel discussion, participants will discuss how to navigate the notoriously complex regulatory angle
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Webinar
Webinar – Keys to success: Unlocking health care access for rare disease
This webinar aims to share insights, experiences, and best practices in navigating the complexities of health care systems to ensure equitable access for rare disease patients
The third webinar of the 2024 series aired August 15th and is available on demand.
About the webinar
Health care access is a global challenge, compounded for rare diseases in which diagnostic and treatment options may be both geographically and financially out of reach for many patients. Yet access is attainable, and in this panel discussion we will explore strategies for overcoming obstacles to access by hearing from those who have successfully done so, as well as from experts in the fields of bioethics, biomedicine, and policy.
Our panelists will share their insights, experiences, and best practices in navigating the complexities of health care systems to ensure equitable access for rare disease patients. We’ll also hear from people who have navigated the health care access landscape, and learn from their success stories.
In this webinar, attendees will:
- Gain a deeper understanding of the unique challenges faced by individuals with rare diseases in accessing health care worldwide
- Learn about successful advocacy initiatives and strategies employed to overcome barriers to health care access for rare disease patients
- Acquire insights into the role of policy reform and innovative solutions in improving health care access for individuals with rare diseases.
The webinar is expected to run for about 60 minutes.
Panel:
Jeromie Ballreich (Johns Hopkins University, Baltimore, MD)
Elizabeth Currid-Halkett (University of Southern California, Los Angeles, CA)
Elizabeth Yuko (Fordham University, Bronx, NY)
Maurizio Scarpa (University of Padova, Padova, Italy)
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